Please see our instructional videos below for guidance and information on Leukaemia.
Brian shares with us: how he learned of and reacted to his wife's diagnosis, how that affected him, what he understood and how they discovered what this meant. how they both gained their knowledge to put things in context, how learning and information networks were key, how on-line resources countered some of the isolation while they supported each other.
Derek shares with us how he became involved with CLLSA: how meeting people with CLL at CLLSA meetings encouraged him to become involved with CLLSA as a trustee to increase resources, Derek outlines.the types of fundraisers CLLSA are involved in and how members and the public are needed, how important it is to raise the profile of CLL, how this year there have been some great CLLSA fundraisers that have generously raised funds to support CLL.
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Celeste shares with us: her insights if you are considering a clinical trial, how very few CLL information and support resources are available in Spain for a CLL patient and their family, how as an English speaker, on-line information and support resources have been a lifeline to aid her navigate and learn about CLL, what clinical trials and new treatments are available and how important her family has been in supporting her navigation.
Derek shares with us: how he felt when he was diagnosed with CLL and his journey since then ,how he copes living with 'watch and wait' and involving family, friends and doctors, his hopes for the future and his activities that keep him busy.
Arthur shares with us: how he felt to be diagnosed with CLL, how he was diagnosed, how this was handled, how he coped, impact of CLL, where he is now in his CLL treatment journey and his hope for the future.