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Who we are

About CLL Support

In 2020 the association has over


members making it one of the biggest patient-led charities in the UK.

CLL was formed in


when a group of CLL patients and their carers decided that more could be done to support.

Today over


members of our on-line community share in supporting each other and discussing together challenges, news and information.

Who we are

Welcome to CLL Support, a patient – led UK charity.

Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information.

We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE).

Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way.

Currently, we have more than 3,000 members.

CLL Support Annual report cover

Our mission

Our aim is to empower people affected by CLL and related conditions by supporting learning and self-development using reliable and current websites, literature and links to current sources of information, supported by our own website and frequent regional members meetings with expert consultant speakers.

We also have well-established links with national leukaemia and lymphoma charities and other international CLL organisations, all accessible from this site. We provide support to CLL patients and their carers and inform them of development in treatment and research.

CLL overview

Become part of our community

We rely on the generosity of members and others to maintain the high level of service and support which many find so valuable.

Who we are

Hilary Lindsay

Chair of Trustees

John Greensmyth

Deputy Chair

Norah Grant


Anthea Holland


Steffi Sutters


Debbie Yates


Andy Taylor


Marc Auckland


Brian Gardom


Rupert Beazley


Gail Wiegman


Lelia Duley


Frank Mercer


Matt Gibson


Jackie McCreery


Michael O'Neill


Shawn Boden


Peter Allen


Heather Troke


Jackie Martin

Patient Advocate

Dr Ben Kennedy

Medical Advisor

Samir Agrawal

Medical Advisor

Cherry Mills

Donor Support Officer

Sarah Tobin


More information about us

The trustees are grateful for the support of Dr Samir Agrawal as our medical advisor and of our patient advocate Jackie Martin. We also have a part time coordinator, Sarah Tobin, who has taken on the daily administration of the charity. We are very fortunate to have the support of a number of volunteers, our ‘Champions’, who help us to distribute our leaflets to CLL clinics and assist us in increasing the awareness of CLL Support amongst patients and their supporters. We have been working hard on our plans for the future of the charity, and you can find our 5 year strategy here.