Please see our instructional videos below for guidance and information on Leukaemia.
Nick shares with us: How he was diagnosed How hard it was to adjust to that diagnosis, How he gained information to help to do this, What this meant for his family how he discussed this with his children, how others with CLL in support groups; in person and on-line gave him insights that made a difference, How the family lives with diagnosis and the impact of this on them, The support they have given him and the guilt.
Chonette shares with us: How Diagnosis 12 years ago changed her plans, How the internet brought her together with a small group of UK people with CLL in 2005 to start the CLL support Association; To help people find reliable information and meet others, How ten years on Chonette remains in full remission following treatment with a transplant five years ago and the CLLSA has grown to what it is now and how others can become involved with CLL Support
Kirk shares with us: His CLL diagnosis, How little information accompanied it, How Kirk has gained information from groups like CLLSA and our international community supporting each other on-line on CLLSA at Healthunlocked, How time has allowed for more in depth discussion with his clinician to gain better understanding and get on and become able to better live on watch and wait.
Andy shares with us: What led to his CLL diagnosis, how he received the news, the conflicting message, how this impacted on Andy, his challenges living with symptoms while on watch and wait, understanding the concept, how it took time to be "reasonably comfortable" living with CLL & watch and wait and how if more information was made available to him earlier on it would have helped.
Jan shares with us: How her CLL diagnosis has altered her life, How the support of her family helped her through treatment, How joining CLLSA and meeting people in person and on-line who "get it" has been a great help, How family can help people learn to use the internet. Jan also wishes for improved access to specialists.
