22nd April 2020
The UK CLL Forum is the umbrella organisation for CLL specialists, researchers, scientists and related charities treatment and support across the UK. We are aware that there has been some confusion over what CLL patients should be doing during the current viral pandemic. The following advice is important, and we would urge all CLL patients to follow the recommendations. Please print and provide this information to your Health Care lead or employer should they be doubt as to your need to shield.
Why is this letter necessary?
Some CLL patients have been unclear about what ‘self-isolation’ and ‘shielding’ mean, whether this applies to them, and what they should do. This letter clarifies the position.
If you are a CLL patient, you have a damaged immune system, even if you are on ‘watch and wait’. This means that you are in the very vulnerable group and makes it more likely that you will be unable to fight off infections. The Covid-19 virus is believed to be very easily transmitted and catching the virus could lead to very serious complications. All CLL Patients should follow the Shielding guidance detailed here.
These are our strong recommendation for all CLL patients:
What to do if you feel you have caught the virus
If you think you might be experiencing symptoms or have been exposed to the virus, you should:
After discussion with you, your consultant may recommend deferring or delaying treatment if they feel it is in your best interest. Please do not stop any treatment for CLL without discussing this with your consultant or a member of their team first.
On behalf of the UK CLL Forum, we hope you will remain safe and well. The best way to do this is to follow the guidance above. We are working closely with CLL Support and Leukaemia Care to help you. Visit our web site.
Renata Walewska Chair CLL Forum
Who we are
We are a patient led UK charity, our mission is to support and empower CLL patients, their families and their carers.Read more
Our 24 hour membership telephone number is: 0800 977 4396
CLL is a malignancy of B lymphocytes, one of several types of cells of the immune system.Read more
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