About CLL Support
In 2025 the association has over
3,500
members making it one of the biggest patient-led charities in the UK.
CLL was formed in
2004
when a group of CLL patients and their carers decided that more could be done to support.
Today over
22,000
members of our on-line community share in supporting each other and discussing together challenges, news and information.
Who we are
Welcome to CLL Support, a patient – led UK charity.
Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information.
We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE).
Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way.
Currently, we have more than 3,000 members.
Our mission
Our aim is to empower people affected by CLL and related conditions by supporting learning and self-development using reliable and current websites, literature and links to current sources of information, supported by our own website and frequent regional members meetings with expert consultant speakers.
We also have well-established links with national leukaemia and lymphoma charities and other international CLL organisations, all accessible from this site. We provide support to CLL patients and their carers and inform them of development in treatment and research.
CLL overviewBecome part of our community
We rely on the generosity of members and others to maintain the high level of service and support which many find so valuable.
Who we are
Hilary Lindsay
Chair of Trustees
Peter Allen
Deputy Chair
John Greensmyth
Deputy Chair
Norah Grant
Trustee
Anthea Holland
Trustee
Debbie Yates
Trustee
Suzanne Richardson
Trustee
Marianne Van De l'Isle
Trustee
Troy Van De L'Isle
Trustee
Jezz Booker
Trustee
Marc Auckland
Associate
Steffi Sutters
Associate
Brian Gardom
Associate
Rupert Beazley
Associate
Gail Wiegman
Associate
Matt Gibson
Associate
Jackie McCreery
Associate
Shaun Bowden
Associate
Heather Troke
Associate
Jackie Martin
Associate
Sharon Sanders
Associate
Dr Ben Kennedy
Medical Advisor
Dr Samir Agrawal
Medical Advisor
Cherry Mills
Donor Support Officer
Sarah Tobin
Coordinator
More information about us
The trustees are grateful for the support of Dr Samir Agrawal as our medical advisor and of our patient advocate Jackie Martin. We also have a part time coordinator, Sarah Tobin, who has taken on the daily administration of the charity. We have been working hard on our plans for the future of the charity, and you can find our 5 year strategy here.
